MY NAME IS SUZANNE AND I SUFFER FROM SPINAL MYOCLONUS WHICH IS A RARE MOVEMENT DISORDER AT PRESENT THERE IS NO CURE AND VERY LITTLE UNDERSTANDING OF THIS CONDITION. I HAVE INVOLUNTARY MOVEMENTS WHICH I CANNOT CONTROL AND THEY INTERFERE WITH MY EVERY DAY LIFE CAUSING PAIN, LACK OF SLEEP, MUSCLE WEAKNESS. MYOCLONUS IS INVOLUNTARY JERKING OF MUSCLES AND MINE INVOLVES MY BACK AND LEGS. I ALSO SUFFER STARTLE MYOCLONUS WHICH IS BROUGHT ON BY TOUCH, NOISE AND LIGHT. MORE RESEARCH IS NEEDED TO FIND A CURE. PLEASE HELP ME WITH MY PETITION.
SUZANNE PEEL.