Nadezda Pejovic’s Post

Thank you to my panel of experts — Prof Epee Emilienne, Prof Alison K., Prof Anil Krishna, Prof Jai Das — for the insightful discussion on placing communities at the center of disease elimination at the #GLIDEsymposium. We've learned that there is no one-size-fits-all approach to engaging communities; it is mainly country, disease, and, more generally, context-specific. A deep understanding of community dynamics and the community itself enables the implementation of tailored activities that contribute to and support disease elimination efforts. #diseaseElimination #beatntds #UniteToEliminate #communityempowerment

🇷🇺 News from around the world In recent months, HAE Russia has expanded to include new members. Over the seven years of its existence, the organization has already united more than 300 participants. In the latest issue of Global Perspectives, the President of HAE Russia, Elena Bezbozhnaya, tells us about the organization's initiatives to ensure people with HAE are not left alone with their disease and related problems. Read more about HAE Russia's activities in the article on our website 👉👉 https://lnkd.in/eH6vKFU4 Want to read more news from our member countries? Please visit our website: Member Countries 👉👉 https://lnkd.in/dVrRVBd Global Perspectives 👉👉 https://lnkd.in/e5HHcXF

Pompe, mucopolysaccharidoses, Fabry, Gaucher... Have you ever heard these words? You might think the second word is odd because it stands next to surnames. Actually, no, because all of these are disease names. They are united by one thing: they rarely occur (one case per 2000 people). Therefore, they have received a common name - rare (orphan) diseases. 🔷 What are these diseases? 🔶 What free treatment for these diseases does the state provide? 🔷 How and where can it be obtained? Answers to these and other questions can be found in the column by Deputy GM on Customer Experience Management and International Relations at the MPU Kateryna Nekrasova for MedOboz – https://bit.ly/3wACEKk The text is available only in Ukrainian. #rarediseaseday #medical #procurement #raredisease #medicalsupply

I am excited to share that our new study, “Community Pharmacies' Promotion of Smoking Cessation Support Services in Saudi Arabia: Examining Current Practice and Barriers” has been published in Environmental Research and Public Health journal. It was a great experience and hopefully that this publication marks the beginning of an exciting journey towards more influential research contributions. Check out our article here https://lnkd.in/eF6VJz_G

The latest Insights for Change article is here! Follow the link to read Saqib Jafarey and Ijaz Nabi's article on Overseas Remittances and Dutch Disease in Pakistan. The article looks at patterns of emigration and remittances, evolution of economic structures, evidence of Dutch Disease, its root causes and solutions. https://lnkd.in/gp4Rv7vS

My article in today's Financial Express where I, on behalf of WANA, shared my experience of organizing Thalassemia Patients and Parents' Meet-up 2024 as a Thalassemia Activist. Link in the comment section👇

Together with Arya Saputra Ramadani and Niken Fharadillah, we presented our abstract at the 8th Indonesian Conference on Tobacco or Health 2023.

The Middle East and Africa (MEA) is a diverse region, never more so than in the care and treatment of those with a rare disease. Cultural, economic and governmental differences all play a part in driving the diversity of this part of the world. In consultation with Prof Ahmed Aziz Bousfiha, we look at the landscape of primary immunodeficiencies in MEA, spotlighting the most prevalent conditions, and exploring issues of access to care, treatments and diagnosis. https://lnkd.in/e3QGUJW7 #primaryimmunodeficiency